ABOUT TAAF 4 Kids
TAAF 4 Kids is the pediatric side of The Aneurysm and AVM Foundation (TAAF). Started first as a separate initiative called The Rylan Project--named for legacy VOGM survivor Rylan Craig--TAAF 4 Kids blossomed to encompass pediatric aneurysm, arteriovenous malformation (AVM), and hemorrhagic stroke.
TAAF 4 Kids is focused on serving the whole family, including those that come to us from a place of loss.
We're here to see that no pediatric aneurysm, AVM or hemorrhagic stroke family ever feels alone.
TAAF 4 Kids aims to fulfill its objectives by:
- Educating about and promoting awareness of pediatric cerebrovascular aneurysm, arteriovenous malformation (AVM)--including Vein of Galen Malformations (VOGM)--and hemorrhagic stroke.
- Connecting patients and their families to resources and a broader network of support.
- Making information readily available that will aid parents/caregivers in pursuing treatment for their child
- Supporting families who have lost a loved one to one of these pediatric diseases by directing them to resources, including them and involving them in additional programming or opportunities.
- Welcoming patients with vascular anomalies outside of their brain. While we recognize this is NOT our area of expertise, we also know that there are no other organizations serving these young people, and we will do our best to be of service.
