SUPPORT RESOURCES: SUPPORT GROUPS
If you would like to post your support group information here, please email us at info@taafonline.org.
| Support Groups | |
| SF Bay Area Aneurysm and AVM Support Group | San Francisco, CA |
| Greater Sacramento Aneurysm/AVM Support Group | Sacramento, CA |
| UCLA Neurosurgery Brain Aneurysm Support Group | Los Angeles |
| AVM Survivors Network | Online forums |
| JNF - Phoenix Support Group | Phoenix, AZ |
| JNF - Kingwood Support Group | Kingwood, TX |
| JNF - Triangle Chapter Support Group | Raleigh, NC & Durham, NC |
| JNF - Minneapolis Support Group | Minneapolis, MN |
| JNF - Houston Methodist Neurological Institute | Houtson, TX |
| Mid-Atlantic AVM/Aneurysm Support Group | College Park, MD |
| Swedish Cerebrovascular Support Group | Seattle, WA |
| SF Bay Area Aneurysm and AVM Support Group | |
| Location: | UCSF 513 Parnassus Avenue, Room S-163 San Francisco, CA 94143 |
| Meetings: | First Thursday of the month, 6pm to 8pm--Virtual Meeting |
| Contacts: | Dina Chon (dina@taafonline.org) |
| Notes: | Register HERE. Also, please contact Dina to confirm the date, time and location of the next regularly scheduled meeting. |
Greater Sacramento Aneurysm/AVM Support Group |
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| Location: | UC Davis Medical Center Lawrence J. Ellison Ambulatory Care Center 4860 Y Street, Room 3015 (Third Floor) Sacramento, CA 95817 |
| Meetings: | Fourth Saturday of the month, 3pm to 5pm |
| Contacts: | Breana Hutchinson (916-734-5613) |
| Notes: | Contact Breana to confirm the date, time, and location of the next regularly scheduled meeting. |
| UCLA | Neurosurgery Brain Aneurysm Support Group |
| Location: | Virtual Meeting |
| Meetings: | By Announcement Next Mtg: Monday, November 23rd, 2020 6:00PM – 7:00PM |
| Contacts: | Marie Rodolfa (MRodolfa@mednet.ucla.edu) |
| Notes: | Please RSVP to obtain meeting information via email. Please RSVP with Marie Rodolfa via email |
AVM Survivors Network |
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| Location: | www.AVMSurvivors.org |
| Notes: | An online community offering chat rooms, discussion forums, blogs, and other resources for survivors and caregivers. Visit the website to find out more and sign up to join the community. |
The Joe Niekro Foundation Support Groups (JNF) |
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| TAAF continues to enjoy a collaborative alliance with the Joe Niekro Foundation. The Joe Niekro Foundation hosts brain aneurysm and AVM support groups in various locations and continues to grow. For the most up-to-date information please visit the Joe Niekro Foundation website at http://www.joeniekrofoundation.org. | |
Joe Niekro Foundation – Phoenix Support Group |
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| Location: | Barrow Neurological Institute St. Joseph's Hospital 350 W. Thomas Rd Phoenix, AZ 85103 Conference 4 & 5 |
| Meetings: | Third Wednesday of the month, 6pm to 8pm |
| Contacts: |
Natalie Niekro (nniekro@joeniekrofoundation.org) |
Joe Niekro Foundation – Kingwood Support Group |
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| Location: | Kingwood Medical Center 22999 US Highway 59 N. Kingwood, TX 77339 Community Room - located inside Entrance C |
| Meetings: | Third Wednesday of the month, 6pm to 7pm |
| Contacts: | Dianne Price (dianne.price@HCAhealthcare.com or 281-348-8975) |
Joe Niekro Foundation – Triangle Chapter Support Group (Raleigh, Durham, Chapel Hill) |
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| Location: | Duke Raleigh Hospital 3404 Wake Forest Rd Medical Building #7 (across from Emergency Dept, behind P2 Parking Deck) Raleigh, NC 27609 Classrooms 1 & 2 Shaner Room Duke Learning @ Organization Development Bldg. 402 Oregon Ave. Durham, NC 27705 |
| Meetings: | Third Monday of the month, alternating between Durham and Raleigh |
| Contacts: |
Janie Schaeffer (janie@joeniekrofoundation.org) |
Joe Niekro Foundation – Minneapolis Support Group |
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| Contacts: | Kari (kari@joeniekrofoundation.org) |
| Joe Niekro Foundation – Houston Methodist Neurological Institute | |
| Location: | Houston Methodist - Greenbriar Office Building 8100 Greenbriar, Conference Room 304 Houston, TX 77054 |
| Meetings: | Third Tuesday of the month, 6:00pm to 7:30pm |
| Contacts: | Nikki Trog (Houston1@JoeNiekroFoundation. |
| Notes: | Please RSVP to the email listed to confirm date and time of meeting and so adequate food can be provided. |
Mid-Atlantic AVM/Aneurysm Support Group |
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| Location: | Jason's Deli 7356 Baltimore Ave. College Park, Maryland 20740 |
| Meetings: | First Saturday of the month, 12:30pm to 2:30pm |
| Contacts: | Hiroko Nishimura and Molly Barr (midatlanticavm@gmail.com) |
| Notes: | Please refer to website for maps and exact location of meeting for the next month: http://midatlanticavm.com |
Swedish Cerebrovascular Support Group |
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| Location: | Swedish Medical Center, Cherry Hill Campus James Tower, 1st floor Swedish Education and Conference Center, Room D 550 17th Ave. Seattle, WA 98122 |
| Meetings: | Third Monday of the month, 6:30pm to 8pm |
| Contacts: | Tami Bloom (tami.bloom@swedish.org) |
| Notes: | Please RSVP: 206-320-4985. Geared toward patients diagnosed and treated for brain aneurysm or AVM. Open to families and caregivers. |