Support Groups Directory

SUPPORT RESOURCES: SUPPORT GROUPS

If you would like to post your support group information here, please email us at info@taafonline.org.

Support Groups
SF Bay Area Aneurysm and AVM Support Group San Francisco, CA
Greater Sacramento Aneurysm/AVM Support Group Sacramento, CA
UCLA Neurosurgery Brain Aneurysm Support Group Los Angeles
AVM Survivors Network Online forums
JNF - Phoenix Support Group Phoenix, AZ
JNF - Kingwood Support Group Kingwood, TX
JNF - Triangle Chapter Support Group Raleigh, NC & Durham, NC
JNF - Minneapolis Support Group Minneapolis, MN
JNF - Houston Methodist Neurological Institute Houtson, TX
Mid-Atlantic AVM/Aneurysm Support Group College Park, MD
Swedish Cerebrovascular Support Group Seattle, WA





             

SF Bay Area Aneurysm and AVM Support Group
Location: UCSF
513 Parnassus Avenue, Room S-163
San Francisco, CA 94143
Meetings: First Thursday of the month, 6pm to 8pm--Virtual Meeting
Contacts: Dina Chon (dina@taafonline.org)
Notes: Register HERE.  Also, please contact Dina to confirm the date, time and location of the next regularly scheduled meeting.

Greater Sacramento Aneurysm/AVM Support Group
Location: UC Davis Medical Center
Lawrence J. Ellison Ambulatory Care Center
4860 Y Street, Room 3015 (Third Floor)
Sacramento, CA 95817
Meetings: Fourth Saturday of the month, 3pm to 5pm
Contacts: Breana Hutchinson (916-734-5613)
Notes: Contact Breana to confirm the date, time, and location of the next regularly scheduled meeting.
   
UCLA Neurosurgery Brain Aneurysm Support Group
Location: Virtual Meeting
Meetings: By Announcement
Next Mtg: Monday, November 23rd, 2020
6:00PM – 7:00PM
Contacts: Marie Rodolfa (MRodolfa@mednet.ucla.edu)
Notes: Please RSVP to obtain meeting information via email.
Please RSVP with Marie Rodolfa via email 

AVM Survivors Network
Location: www.AVMSurvivors.org
Notes: An online community offering chat rooms, discussion forums, blogs, and other resources for survivors and caregivers. Visit the website to find out more and sign up to join the community.

The Joe Niekro Foundation Support Groups (JNF)
TAAF continues to enjoy a collaborative alliance with the Joe Niekro Foundation. The Joe Niekro Foundation hosts brain aneurysm and AVM support groups in various locations and continues to grow. For the most up-to-date information please visit the Joe Niekro Foundation website at http://www.joeniekrofoundation.org.

Joe Niekro Foundation – Phoenix Support Group
Location: Barrow Neurological Institute
St. Joseph's Hospital
350 W. Thomas Rd
Phoenix, AZ 85103
Conference 4 & 5
Meetings: Third Wednesday of the month, 6pm to 8pm
Contacts:

Natalie Niekro (nniekro@joeniekrofoundation.org)


Joe Niekro Foundation – Kingwood Support Group
Location: Kingwood Medical Center
22999 US Highway 59 N.
Kingwood, TX 77339
Community Room - located inside Entrance C
Meetings: Third Wednesday of the month, 6pm to 7pm
Contacts: Dianne Price (dianne.price@HCAhealthcare.com or 281-348-8975)

Joe Niekro Foundation – Triangle Chapter Support Group
(Raleigh, Durham, Chapel Hill)
Location: Duke Raleigh Hospital
3404 Wake Forest Rd
Medical Building #7 (across from Emergency Dept, behind P2 Parking Deck)
Raleigh, NC 27609
Classrooms 1 & 2

Shaner Room
Duke Learning @ Organization Development Bldg.
402 Oregon Ave.
Durham, NC 27705
Meetings: Third Monday of the month, alternating between Durham and Raleigh
Contacts:

Janie Schaeffer (janie@joeniekrofoundation.org)


Joe Niekro Foundation – Minneapolis Support Group
Contacts: Kari (kari@joeniekrofoundation.org)
   
Joe Niekro Foundation – Houston Methodist Neurological Institute
Location: Houston Methodist - Greenbriar Office Building
8100 Greenbriar, Conference Room 304
Houston, TX 77054
Meetings: Third Tuesday of the month, 6:00pm to 7:30pm
Contacts: Nikki Trog (Houston1@JoeNiekroFoundation.org)
Notes: Please RSVP to the email listed to confirm date and time of meeting and so adequate food can be provided.

Mid-Atlantic AVM/Aneurysm Support Group
Location: Jason's Deli
7356 Baltimore Ave.
College Park, Maryland 20740
Meetings: First Saturday of the month, 12:30pm to 2:30pm
Contacts: Hiroko Nishimura and Molly Barr (midatlanticavm@gmail.com)
Notes: Please refer to website for maps and exact location of meeting for the next month: http://midatlanticavm.com

Swedish Cerebrovascular Support Group
Location: Swedish Medical Center, Cherry Hill Campus
James Tower, 1st floor
Swedish Education and Conference Center, Room D
550 17th Ave.
Seattle, WA 98122
Meetings: Third Monday of the month, 6:30pm to 8pm
Contacts: Tami Bloom (tami.bloom@swedish.org)
Notes: Please RSVP: 206-320-4985. Geared toward patients diagnosed and treated for brain aneurysm or AVM. Open to families and caregivers.