Share Your Story

Share Your Story

Sharing your story is a great way to raise awareness, build a community of support with people affected by aneurysm and AVM around the world, and strengthen The Aneurysm and AVM Foundation's work in advocating for patients, providing education, and funding cerebrovascular research. We invite you to share your story with us by filling out the form below.

After submitting your story, we may contact you regarding your experience. Other than your first name, your contact information will not be released without your permission and you are under no obligation to share more than you are submitting today. 

Please note that we cannot answer questions or respond to your concerns within this form. If you need medical care, please contact your health care provider. If you have TAAF-related questions or concerns, please feel free to Contact Us.

Share Your Story

Someone else

Family member
Medical professional


Ruptured aneurysm
Arteriovenous malformation
Vein of Galen malformation
Cavernous malformation
Subarachnoid hemorrhage
Hemorrhagic stroke


By clicking the "Share my story" button, you agree:You confirm that you have written your submission yourself; You give The Aneurysm and AVM Foundation (TAAF) permission to use your submission or any portion of it and any photographs submitted for current or future TAAF fundraising, advocacy, or outreach projects, including possibly sharing your words with a variety of audiences, media, or publications; If your story includes details about anyone else, you have permission to share such details; If we decide to share your story, your statements will appear along with your first name, the first letter of your last name, your city, and your state. If we want to share additional information we will contact you; You give TAAF permission to contact you for further authorization or if we have any questions about your submission or this authorization.